Loving Jason

Andrea Cannon
3 min readApr 16, 2018

Yesterday was a good day. Jason was in a really good mood, so we sat talking for a little while. Trying to talk, anyway. It’s a difficult process. Jason is my 39 year old kid brother. I say kid, not because he is younger than me (which he is), but because in many ways he is a child trapped in a man’s body. And I am slowly accepting the realization that someday he will be my responsibility.

Source: Pixabay

Jason …. where to begin…Jason has had the toughest, most unfair life of anyone I have ever known. He has suffered several illnesses, and as a result he currently has multiple disabilities. He is legally blind. He has epilepsy. And he has lost his hearing. This is just a preview of his ailments.

Losing his hearing was a tipping point for my brother. His physical abilities were already so limited; when he could no longer hear, he became angry, frustrated, depressed. Wouldn’t you? I know I would. He had been deaf in his left ear for a very long time. It’s one of the dangers of epilipsy. He had a seizure, fell and hit his head, destroyed the nerves in his ear. But the other was still good. It was manageable. And then, a couple of years ago, the same thing happened again, and bam — no sound in the right ear.

Fast forward through a couple of surgeries and some recovery and training time, and the Cochlear Implants are finally starting to help. If I speak slowly and loudly, and sit right in front of him, then Jason can hear me. We can talk a little. It helps him — at least I think it does. I think having big sister around to talk to makes him feel better. So I try to spend time talking to him every week. His lifestyle is isolated, and I hate that for him. I want him to know that he is loved. I want him to feel it.

There are support and therapy groups for the visually impaired. I have found support groups for epileptics and groups for the hearing impaired. But I can’t find anything for people like Jason, people with multiple disabilities.

I usually write fiction. I am shy and introverted and uncomfortable sharing my personal, real feelings and experiences. But lately this idea of creating a Jason Journal has been pulling at my heart. He is a wonderful, loving and thoughtful soul, and very few people will ever realize it. I want to record his life experience because, as hard as it its, is should never be forgotten. And I want to know if anyone else out there has someone like Jason in his or her life.

Thank you for reading these words that have poured from my heart. If you’d like to know more about Jason and his struggles, please click here for the next essay in this series.

Andrea Cannon

Wife / Mother / Christian / Author